I am currently dating someone with SCD, and I’m finding it hard to cope. He often has pain attacks that are usually caused by stress. I will say, since we have gotten together, he is managing his stress alot better, but I still feel helpless. He goes into the hospital 2x a week for his treatments and sometimes he doesn’t get out until a day or two later because his blood pressure is too high. He has had multiple surgeries for kidney stones and other medical issues. He is on blood pressure meds, xanax for the anxiety and stress, percocets for the pain and the regular sickle cell meds. Now his latest issues are blood clots that they keep finding in his head. They are not in his brain, but nonetheless, the are dangerous. I’m really scared and worried about his next procedure because he almost didn’t make it from the last one he had a few weeks ago.
Sickle Cell Disease and housing
Learn about our expanded patient care options for your health care needs. Sickle cell disease is an inherited blood disorder affecting red blood cells. Normal red blood cells contain hemoglobin A. People with sickle cell disease have red blood cells containing mostly hemoglobin S, an abnormal type of hemoglobin.
Vaso-occlusive phenomena and hemolysis are the clinical hallmarks of sickle cell disease (SCD). Vaso-occlusion results in recurrent painful.
Rarely, extreme conditions such as severe dehydration and high-intensity physical activity can lead to serious health issues, including sudden death, in these individuals. A: Sickle cell trait means that someone is a carrier for one copy of the gene that causes sickle cell disease. Red blood cells contain some abnormal sickle hemoglobin, but most of the hemoglobin in each red blood cell is normal. Q: Who is affected by sickle cell trait? A: Millions of Americans and hundreds of millions of individuals worldwide have sickle cell trait.
Most people with sickle cell trait are of African ancestry, but not exclusively. Q: How does someone get sickle cell trait? A: Sickle cell is an inherited condition. It cannot be acquired in any other way. Q: How does an individual know if he or she has sickle cell trait? How is it diagnosed? A: Sickle cell trait can only be detected by a blood test.
Sickle Cell Disease
James B. Herrick with complaints of pain episodes, and symptoms of anemia. Ernest Irons to the case. When Herrick saw this in the chart, he became interested because he saw that this might be a new, unknown, disease.
Although youngsters with sickle cell disease may participate in sports for fun, they are All players should be up to date on all vaccinations, especially HBV.
In September , Lametra Scott gave birth to a baby boy. She named him Rickey. Before his birth, Lametra had no idea that she carried the sickle cell trait SCT. The doctor provided her the option to speak with a genetic counselor to determine possible next steps for her pregnancy. Because of her strong faith, Lametra chose to continue the pregnancy. When Rickey was born, his primary care doctor tested him for SCD and Lametra was comforted to learn that her son did not have the disease.
She was told that he carried the trait for SCD just like his parents. However, this comforting feeling did not last long, as the State of Tennessee Department of Health soon contacted her and requested that she take Rickey in for confirmatory testing. The test was repeated, and the results showed that Ricky did in fact have SCD. As you can imagine, this news was a devastating blow to the family. Her hematologist a blood disorders specialist , Dr. Michael DeBaun, and his nurse, Jeannie Byrd, were an incredible source of information, giving Lametra a handbook for new patients that was very helpful.
There was also a sickle cell support organization in the city, but there was not an organization with an initiative that focused on SCD education.
My Friend Has Sickle Cell Disease. How Can I Help?
Register or Login. This self-doubt has likely destroyed a number of my most recent relationships with women. Woman want a anemia what is confident. A man what get tell her they are going to do something and then deliver upon it. It makes picturing the perfect relationship hard, because that perfect life merely seems like an unattainable concept. Which is completely unattractive.
Sickle cell disease, sometimes called sickle cell anemia, causes episodes or crises of intense pain. It can also cause pregnancy problems and.
Sickle cell disease changes normal, round red blood cells into cells that can be shaped like crescent moons. The name “sickle cell” comes from the crescent shape of the cells. A sickle is a tool with a crescent-shaped blade. Normal red blood cells move easily through your blood vessels, taking oxygen to every part of your body. But sickled cells can get stuck and block blood vessels, which stops the oxygen from getting through.
That can cause a lot of pain. It can also harm organs, muscles, and bones. See a picture of sickle cells blocking a blood vessel. Having sickle cell disease means a lifelong battle against the health problems it can cause, such as pain, infections, anemia , and stroke. But many people are able to have a very good quality of life by learning to manage the disease.
Sickle cell disease is inherited, which means it is passed from parent to child. To get sickle cell disease, a child has to inherit two sickle cell genes —one from each parent. When a child inherits the gene from just one parent, that child has sickle cell trait.
Sickle cell disease
Dating someone with a complex medical condition like sickle cell can be very challenging, but also achievable. Before deciding to date a sickle cell individual, educate yourself thoroughly on sickle cell to understand the general idea of what you will be signing up for. In addition, get tested at the hospital to know your genotype status; If you are AA, then you have no chance of passing on the sickle cell disease if you do have a child with someone that has sickle cell disease.
Home treatment for sickle cell disease includes steps you can take not Avoid contact with anyone suspected of having fifth disease, which is Check your immunization schedule and keep your immunizations up to date.
This is a report on external research. It is not endorsed by the Sickle Cell Society and does not form part of our Information Standard-accredited information. Human sexuality is an integral part of our existence, a vital aspect of humanity and an important determinant of health status. Aside from reproduction, sexual behaviour serves other important functions such as fostering intimacy and as a source of pleasure. The complex interplay of physiological and psychological processes that make up sexuality can be affected by the presence of chronic disease.
A review of the medical and research literature highlights several negative effects of Sickle Cell Disease SCD on sexual development and function in men such as delayed sexual maturation, sex hormone disturbances, priapism persistent painful erection usually requiring medical attention , erection problems and reduced fertility. At present there is no information available for sufferers or others with an interest in SCD on this aspect of the disease other than the limited information to be found in medical texts which does not reach a lay audience.
Sickle Cell Anemia
Many of these complications come into play on a psychological level , but there have also been occasions where I take sick after sharing intimacy with a partner. In this diary, I will explain my experiences in hopes that readers and sufferers will understand. I lost my virginity later than most. I was likely seen as an outsider and unattractive to the opposite sex as a result. I was fortunate enough to have a girlfriend who understood what Sickle Cell was.
She even had a best friend who suffered from the disease.
But in Nigeria, the first date conversation is more likely to be about your dating someone who carries the genes that cause sickle cell disease.
Sickle cell disease is a group of red blood cell disorders that are passed down from your parents. This means that it is a genetic disease, and you are born with it.
Dating With Sickle Cell Can Be a Psychologically Damaging Affair
Sickle cell anemia Hb SS is an inherited condition of the blood. In a healthy person, red blood cells are a round, donut shape. In a person affected by Hb SS some of the red blood cells are a crescent or sickle shape. These abnormally shaped cells do not live as long as normal red blood cells and tend to get stuck in blood vessels where they can block the flow of blood to certain parts of the body.
Please note the date of last review or update on all articles. No content on this site, regardless of date, should ever be used as a substitute for direct medical advice.
March 17, If you or your family member has sickle cell disease SCD , you may be worried about what this new disease may mean to you. The more you learn about COVID, the better you can understand what to look for, how to protect yourself or your loved one, and what to do IF you feel sick. In light of this, the risks to our community may change in the coming days, weeks and months. It is critical that you stay regularly informed. Members of MARAC have been speaking daily with other experts around the world to get new information that may be useful to you.
The coronavirus pandemic is real; it is not just a scare tactic, and it is not fake news. Stay home as much as possible. CALL first, if possible. Try to protect yourself and them, as well. The virus can live on surfaces for many days.
Disability Claims Process Video Series. What evidence do we need to document that you have a hematological disorder? To be persuasive, this report must state that you had the appropriate definitive laboratory test or tests for diagnosing your disorder and provide the results, or explain how your diagnosis was established by other diagnostic method s consistent with the prevailing state of medical knowledge and clinical practice.
We will make every reasonable effort to obtain the results of appropriate laboratory testing you have had.
Sickle cell disease (SCD) is an inherited blood disorder. This means it is passed down from a parent’s genes. It causes the body to make abnormal hemoglobin.
Sickle cell disease SCD is an inherited blood disorder. It causes the body to make abnormal hemoglobin. This is the protein in red blood cells that carries oxygen to all parts of your body. Healthy red blood cells are round and move easily all over the body. With SCD, the red blood cells are hard and sticky. They are shaped like the letter C and like a farm tool called a sickle. These damaged red blood cells sickle cells clump together. They get stuck in small blood vessels and block blood flow.
This blockage stops the movement of healthy oxygen-rich blood.